by defeatmsa | Jun 15, 2024 | Patient Support Blog
My name is Josh I am 46 years of age. My passions include surfing gardening, travelling, and cooking. I worked as registered nurse for 24 years both in Australia and the United Kingdom. I have been married for 20 years and have a 14-year-old son. I live in Illawarra...
by defeatmsa | Feb 16, 2024 | Caregivers Blog
Caregiver Blog Post #2 The road to diagnosis… Are we there yet?…No Now?…No When are we going to get there? Said anyone who has taken a road trip. Our trip took 3 1/2 years to get a doctor to agree to a diagnosis of “possible/probable...
by defeatmsa | Nov 20, 2023 | Uncategorized
DEFEAT MSA UNITED FACEBOOK GROUPS & VIDEO CHAT SUPPORT MEETINGS GUIDELINES (These policies are subject to change without public notice. Your continued membership in a Defeat MSA Alliance associated group implies consent to these policies.) 1) CONTENT: Content on...
by defeatmsa | Nov 16, 2023 | Caregivers Blog
“But I’d of had to miss the dance…” – Anne Kastelic (Caregiver, Cleveland, Ohio) Today I opened Facebook to see a call for a caregiver writing opportunity for Defeat MSA’s “Caregiver’s Blog.” The idea is to share our story in an effort to help others on the MSA...
by defeatmsa | Nov 16, 2023 | Medical Research
Multiple system atrophy (MSA) is a progressive neurodegenerative disease that affects a key area of the brain responsible for regulating vital bodily functions. As a result, patients with MSA develop orthostatic hypotension (a drop in blood pressure when moving from...
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