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HELP US DEFEAT MSA NOW
Defeat Multiple System Atrophy (MSA) Canada/Vaincre L’atrophie Multisystématisée (AMS) Canada is a Canadian registered organization that aspires to balance efforts to support patients, educate medical professionals, raise public awareness, nurture promising research and advocate for the MSA community.
GIVE HELP, GIVE HOPE
- Help Us Support MSA Research in Canada!
- Help Us Support MSA Patients in Canada!
- Help Us Support MSA Awareness in Canada!
- Help Us Educate Medical Professionals in Canada!
4 Ways to Support Our Efforts:
1) Create a Facebook Fundraiser: https://www.facebook.com/fund/defeatmsacanada/
2) Create a Canada Helps Fundraiser (dedications to a loved one are possible too): https://www.canadahelps.org/en/charities/defeat-msa-multiple-system-atrophy-canada/
2) Donate Directly to Our Secure Website (dedications to a loved one are possible too): www.msacanada.ca/donate-to-us/
4) Via Cheque, Send to: Defeat MSA Canada/Vaincre AMS Canada, 3041 Dougall Avenue, Suite 208, Windsor, Ontario N9E 1S3
HELP US GIVE HOPE. CLICK OUR LINKTREE TO CHOOSE ONE A FUNDRAISER: https://linktr.ee/defeatmsacanada
NO AMOUNT IS TOO SMALL – BECAUSE EVERY AMOUNT GIVES HOPE TO THOSE THAT NEED IT!
Help Put Canada on the MSA Map! Help All Those Affected By MSA in Canada!
MSA Research
Patient Programs
MSA Education
Public Awareness
Giving Programs
LOOKING FOR OTHER WAYS TO GET INVOLVED?
LOOKING FOR OTHER WAYS TO GET INVOLVED?
MSA EXPERT
SPOTLIGHT
Wouter Peelaerts, PhD
KU Leuven, Belgium
Dr. Wouter Peelaerts is an experienced neuroscientist with special expertise in degenerative brain diseases. He earned his Ph.D. in biomedical sciences from KU Leuven and subsequently completed a postdoctoral fellowship there focused on neurobiology and gene therapy under the mentorship of Prof. Veerle Baekelandt. His efforts helped uncover new insights that further link the abnormal protein alpha-synuclein to neurodegenerative diseases, in particular Parkinson’s and Multiple System Atrophy. He has received numerous accolades for his research, including the 2020 JiePie award for MSA research, a prestigious 2017–2019 Fulbright Fellowship and the ATCG and ID&T postdoctoral award. In 2017, he joined the lab of Dr. Patrik Brundin at Van Andel Institute, MI, USA. His current research focuses on drug repurposing and how infections can trigger Multiple System Atrophy. Dr. Peelaerts serves on the Scientific and Medical Research Advisory Committee for the six charities that make up MSA United International Consortium, which includes Defeat MSA Alliance (USA). He is Chair of the Alliance’s Scientific Research Section.
List of Publications
Christopher T. Tulisiak, Mercado G, Peelaerts W, Brundin L, Brundin P. 2019. Chapter Seventeen – Can infections trigger alpha-synucleinopathies? Progress in molecular biology and translational science. Vol 168. Pages 299-322.
Quansah E*, Peelaerts W*, Langston JW, Simon DK, Colca J, Brundin P. 2018. Targeting energy metabolism via the mitochondrial pyruvate carrier as a novel approach to attenuate neurodegeneration. Mol Neurodegener 13:28.
*Contributed equally
Peelaerts W, Outeiro TF. 2017. Synuclein misfolding as a therapeutic target. Disease-modifying therapies and targets in neurodegenerative disorders. Academic Press.
Peelaerts W, Baekelandt V. 2016. ɑ-Synuclein strains and the variable pathologies of synucleinopathies. J Neurochem 139(Suppl 1):256–274.
Spotlight Links
“Sticking With MSA” -Dr. Wouter Peelearts (Defeat MSA Alliance Blog Launch, April 2019)
Integrated DNA Technologies and Advanced Technologies and Community Giving Foundation award (2017)
FWO postdoctoral fellowship (2017 – 2020)
Annual Award for Movement Disorders, best scientific article published by a young investigator (2015)
about the
Defeat MSA Awareness Shoe – #KickMSA
The Defeat MSA Awareness Shoe ™ has traveled to multiple countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!
To date, the Shoe has “Kicked MSA” in many countries around the world. Learn more about the story and the globetrotting journey of the MSA Awareness Shoe under MSA Awareness tab or via its website: www.MSAshoe.org
If you are interested in hosting the MSA Awareness Shoe or are connected with a notable person or celeb, please do reach out to us to discuss hosting the MSA Awareness Shoe. Email us: info@defeatmsa.org
#DefeatMSACanada #KickMSA #MSAcanada #DefeatMSA
about the
Defeat MSA Awareness Shoe – #KickMSA
The Defeat MSA Awareness Shoe ™ has traveled to multiple countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!
To date, the Shoe has “Kicked MSA” in many countries around the world. Learn more about the story and the globetrotting journey of the MSA Awareness Shoe under the awareness tab or via its website: www.MSAshoe.org
#DefeatMSA #MSACanada #KickMSA #DeFeetMSA
PATIENTS NEED OUR HELP
Defeat MSA Canada invites all our friends and allies, around the world, to join us in this noble fight, to speak for those who cannot, with one mind, one heart and one voice: to defeat MSA forever!
OUR LEGACY GRANTS
OUR
LEGACY
GRANTS
The Defeat MSA/Vaincre AMS Canada special Individual Named Legacy Grants program enables donors to fund a scientific research, medical education, patient support, public awareness or community advocacy grant and name it in their own name, in tribute to someone or in memory of a loved one. The Legacy Grants program designates four levels of grants: $50,000 (Platinum), $30,000 (Gold), $20,000 (Silver) and $10,000 (Bronze). MSA research grants begin at the Gold level. Please email us: director@msacanada.ca
MSA BLOGS
Caregiving Blog
“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)
Caregiver Blog Post #2 The road to diagnosis... Are we there yet?...No Now?...No When are we going to get there? Said anyone who has taken a road trip. Our trip took 3 1/2 years to get a doctor to agree to a diagnosis of "possible/probable MSA" and we were seeing...
“But I’d of had to miss the dance…” – Anne Kastelic (Caregiver, Cleveland, Ohio)
“But I’d of had to miss the dance…” – Anne Kastelic (Caregiver, Cleveland, Ohio) Today I opened Facebook to see a call for a caregiver writing opportunity for Defeat MSA’s “Caregiver’s Blog.” The idea is to share our story in an effort to help others on the MSA...
Research Blog
Alterity reports additional support for ATH 434
ALTERITY PRESS RELEASE: MELBOURNE, AUSTRALIA AND SAN FRANCISCO, USA – 4 November 2021: Alterity Therapeutics (ASX: ATH, NASDAQ: ATHE) (“Alterity” or “the Company”), a biotechnology company dedicated to developing disease modifying treatments for neurodegenerative...
MODAG Collaboration Update – MSA Drug
Congratulations to MODAG! On behalf of MSA/AMS patients around the world, we are thankful for your efforts! 💜. https://www.tevapharm.com/news-and-media/latest-news/teva-and-modag-announce-licensing-collaboration-for-neurodegenerative-disease-drug-candidate/
Advocacy Blog
Activists Profile: “Laughter is Indeed the Best Medicine” – Kathy and Karen’s Journey
It was 2010, with the holidays fast approaching. Kathy Samuel, Karen Olson’s sister, had just finished a 45-minute phone call with Karen’s doctor. “They told me we needed to say our goodbyes to her," Kathy said, remembering the day with vivid clarity. She called their...
REGISTER NOW – MSA VIRTUAL FREE CONFERENCE, SEPT 24-OCT 2
Defeat MSA Canada/Vaincre AMS Canada, Defeat MSA Alliance (US) and allied charities in the MSA United Consortium are pleased to announce the Second All-Community MSA Virtual Conference, Sept 24-Oct 2, 2021. This year's conference will include several exciting...
GET SOME GEAR & RAISE AWARENESS ALL YEAR LONG!
Defeat MSA Canada/Vaincre L’AMS Canada Board Member & MSA Patient Advocate Kelly Murphy tests out the new mug! Maybe a 'wee nip of something strong? Order One Now! www.MSAcanada.ca There are also online stores for some of our affiliated MSA United charites:...
“Defeat MSA Canada is an amazing organization, giving voice to those affected by this little known, devastating disease. This grass roots effort grew as a work of love and devotion by its founders. Indescribable grief and suffering has been channeled into positive action to help fund vital research and provide support for others dealing with MSA. It is an important and worthwhile organization and I hope to see it continue to serve more and more Canadians in need.”
Elena Fracassa, MS
“The charity remains true to its objective of supporting patients and families living with this dreadful disease, through supporting vital research and helping to network to connect families affected by MSA. This disease does not have a marathon or a 5k run in its name; the charity uses an intriguing device: a traveling shoe as a symbolic marathon to spread awareness among lay public about this devastating disease. “
Dr. Pratik Bhattacharya, MD, MPH
LOOKING FOR OTHER WAYS TO GET INVOLVED?
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Resources & Downloads
Overview MSA Treatments (EN)
Known Treatments AMS (FR)
MSA Virtual Conf - 2021
MSA Virtual Conf - 2022
Medical Resources
Researcher & Mission Blogs
Charity Brochure (English)
Charity Brochure (French)
Patient Brochure (English)
Patient Brochure (French)
MSA Awareness Stickers
Patient Card (English)
Patient Card (French)
Awareness Card (US Edition)
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