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PATIENT
PROGRAMS
MSA
CAREGIVERS BLOG
Joe and Anne Kastelic
“On the Importance of showing up & trying” – By Kimberly Bohannon
Kimberly S. Bohannon was a caregiver to her husband Steve, who passed from MSA at the age of 49. She regularly writes about her experiences in a blog on Medium. Today, for the first time, we share an excerpt from Kimberly’s blog about caring for her husband. Are you...
MSA AWARENESS WARRIORS ZOOM BACKGROUND
USE ZOOM? DOWNLOAD A BACKGROUND WHICH HONORS ALL THOSE BATTLING MSA - FOR MSA AWARENESS MONTH! #defeatmsa #kickmsa #msawarriors #zoomlife #zoombackground #msaawarenessmonth #msaawareness #MultipleSystemAtrophy #msaheroes #msahero
“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)
Caregiver Blog Post #2 The road to diagnosis... Are we there yet?...No Now?...No When are we going to get there? Said anyone who has taken a road trip. Our trip took 3 1/2 years to get a doctor to agree to a diagnosis of "possible/probable MSA" and we were seeing...
PATIENT
BLOG
Joshua Calvert
On Rainbows and Looking Up with MSA
Good Perspective from MSA Warrior & Defeat MSA Canada/Vaincre l’AMS Canada Board Member @Kelly Murphy!
“Finding Balance with MSA” – Joshua Calvert (Patient, Australia)
My name is Josh I am 46 years of age. My passions include surfing gardening, travelling, and cooking. I worked as registered nurse for 24 years both in Australia and the United Kingdom. I have been married for 20 years and have a 14-year-old son. I live in Illawarra...
ACTIVIST PROFILE: VALERIE GARNEAU
If there is one word to describe Valerie Garneau, it would be ‘relentless.’ Valerie along with her husband Joel serve on the board of directors for Defeat MSA/Vaincre AMS Canada. The members of her tight-knit, French-Canadian community would certainly agree with the...
FACEBOOK
ONLINE GROUPS
FOR ALL POLICIES RELATED TO DEFEAT MSA UNITED HOSTED ONLINE AND VIDEO CHAT GROUPS, VISIT THIS PAGE
PRIVATE DEFEAT MSA ALLIANCE/MSA UNITED GROUPS:
https://www.facebook.com/groups/MSAtreatments/
(Defeat MSA Global – MSA Related Treatments, Research & News)
MSA – A Caregivers Journey
https://www.facebook.com/groups/msacaregivers/
MSA Patient Life Affirmations
https://www.facebook.com/groups/msalifeaffirmations/
MSA Clinical Trials
(contact Defeat MSA for admission: defeatmsa@gmail.com)
http://www.facebook.com/groups/MSAgenetics/
(MSA Research Into Genetics Question Discussion)
https://www.facebook.com/groups/DefeatMSADownUnderGroup/
(Defeat MSA Down Under – Australia & New Zealand)
https://www.facebook.com/groups/MSA.Forever.Friends/
(MSA Forever Friends)
https://www.facebook.com/groups/MSApatientLoaners/
(Defeat MSA Medical Equipment Loaner Closet Program Group)
https://www.facebook.com/groups/DefeatMSAfamily/
(Defeat MSA Family Friends & Volunteers)
https://www.facebook.com/groups/MSAbrothersandsisters/
(Defeat MSA Brothers and Sisters Group)
https://www.facebook.com/groups/MSA.Youngins/
(Defeat MSA Young Onset)
https://www.facebook.com/groups/defeatmsalgbt/
(LGBTQ – Defeat Multiple System Atrophy Alliance)
https://www.facebook.com/groups/KickMSA/
(Kick MSA To Raise Awareness)
https://www.facebook.com/groups/atrofiamultisistemica/
(Atrofia Multisistemica – Spanish MSA Central & South America Group)
https://www.facebook.com/groups/AngelsMSA/
(MSA Angels, Prayers & Spirituality)
https://www.facebook.com/groups/SupportMSA/
(Support Cause – Defeat MSA)
https://www.facebook.com/groups/MSAunitedindia/
(MSA South Asian Greater India Region)
https://www.facebook.com/groups/NordicStates/
(Nordic Region MSA)
https://www.facebook.com/groups/MSACentralEurope/
(MSA Central Europe)
https://www.facebook.com/groups/2587300801546835/
(Defeat MSA Italy – Combattiamo L’AMS)
https://www.facebook.com/groups/763513260457173/
(MSA Awareness Bracelets By Kym)
https://www.facebook.com/groups/MSAawarenessTourUK/
(Defeat MSA Awareness Shoe Tour – UK & Irealand)
DEFEAT MSA UNITED STATES GROUPS:
https://www.facebook.com/groups/defeatmsamidwest
(Defeat MSA Midwest States Friends)
https://www.facebook.com/groups/defeatmsamountain/
(Defeat MSA Mountain States Friends)
https://www.facebook.com/groups/defeatmsanortheast/
(Defeat MSA Northeast States Friends)
https://www.facebook.com/groups/defeatmsasouthwest/
(Defeat MSA Southwest States Friends)
https://www.facebook.com/groups/defeatmsamiddleatlantic/
(Defeat MSA Middle Atlantic States Friends)
https://www.facebook.com/groups/defeatmsapacific/
(Defeat MSA Pacific States Friends)
DEFEAT MSA CANADA GROUPS:
https://www.facebook.com/groups/MSA.AMS.Canada/
(Defeat MSA/AMS Canada National)
https://www.facebook.com/groups/MSACanadian.prairies/
(MSA Canada – The Prairies)
https://www.facebook.com/groups/MSA.Canada.BC/
(MSA Canada – British Columbia)
https://www.facebook.com/groups/MSA.Canada.territories/
(MSA Canada – The Territories & Alaska)
https://www.facebook.com/groups/MSA.Atlantic.Provinces/
(MSA Canada – Atlantic Provinces)
https://www.facebook.com/groups/280874549302384/?ref=share
(AMS/MSA Canada – Quebec)
DEFEAT MSA ALLIANCE PAGES:
https://www.facebook.com/DefeatMSA/
(Defeat MSA – USA Page)
https://www.facebook.com/MovementDisorderMilestones/
(Milestones for MSA Page)
https://www.facebook.com/msadownunder/
(MSA Australia and New Zealand – Defeat MSA Down Under Page)
https://www.facebook.com/MSAshoe/
(Where is the MSA Awareness Shoe?)
https://www.facebook.com/Memes4MSA/
(Memes & Graphics Related to MSA)
https://www.facebook.com/defeatmsaunited/
(Defeat MSA United International Page)
https://www.facebook.com/msaawarenessmonth/
(MSA Awareness Month Group)
https://www.facebook.com/NeurologyByDoctorB/
(Neurology By Doctor B Page)
https://www.facebook.com/defeatmsacanada/
(Defeat Multiple System Atrophy Canada)
https://www.facebook.com/msaitaly/
(Defeat MSA Italy – Combattiamo L’AMS)
https://www.facebook.com/laughterismed/
(Laughter is the Best Medicine)
https://www.facebook.com/EatCake4MSA/
(Annual Cake-4-a-Cure Campaign By Defeat MSA Alliance)
https://www.facebook.com/groups/defeatmsalgbt/
(Gay, Lesbian, Bisexual, Transgender & Allies MSA Group – LGBTQ)
DISCLAIMER
Any of these online pages published by MSA Canada are for informational and support purposes only. The information presented in them should not be used for suggesting any diagnosis or understood as recommending any medicines, tests or treatments. Every visitor should consult with his/her doctor or other health care provider for any medical condition.
Furthermore, MSA Canada has used all reasonable care to protect your privacy, ensure confidentiality and maintain a safe and secure online presence. For questions about the website or information contained therein, contact: info@msacanada.ca
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Resources & Downloads
Overview MSA Treatments (EN)
Known Treatments AMS (FR)
MSA Virtual Conf - 2021
MSA Virtual Conf - 2022
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